Kayla day 78

Another long day with Kayla today, I was able to talk with Michael who is with the NICU project. This a program for preemies that may have delays later in life, it's free occupational, physical and developmental therapy for Kayla if she needs it until the age to three. Just wonderful since we know Kayla might have a little bit of issues when she starts to walk with her back. I then was supposed to meet with both Beth the developmental therapist, and Mary the lactation specialist at 1p. They both came be Beth kicked Mary out because she needed to do a bottle assessment on Kayla before Kayla might go home. So I am scheduled with lactation tomorrow now instead. Beth and I talked about feedings at home, what Mike and I need to do to keep them up and keep Kayla gaining weight. She watched as I fed Kayla to see how I did on keeping Kayla going through out the whole feed, and....we passed!!! Hooray, Beth will now be telling Dr. Zarlingo that Kayla did well and should do just fine with feedings at home, yeah. I was then thinking I need to get to know some of the other mom's in NICU before I leave, (if we leave.) So after talking to the nurses about the so called rumor of us leaving them this weekend, I introduced myself to the parents of two little twin girls both weighting 4lbs 3oz. Then to a new mom of twin boys, 2lbs 8oz and 2lbs 5oz, almost the same weight as Kayla. It's so strange to look at these babies and think, wow my baby was really this little, she is such a big girl now. But it's always nice to hear their stories and share ours, comforting to know that there are other people going through the same thing we have been going through. I ate lunch at the hospital today, and went outside for a little walk of my own, thinking about the possibilities of this weekend. Then back in for 5p feeds, Kayla then came out and surprised me when I put her to breast, she usually will just nuzzle and play until the bottle comes, but today she latched on. Just so wonderful, because I have been getting concerned that Kayla might not get this whole latching on thing, but today she went on as if she knew exactly what to do. LOVE HER!!! She just makes my day by her small accomplishments. After a feed and a pump I went for a couple more last minute errands, then ate with Mike and back to the hospital at 9p. Carol was our nurse last night she was able to get Kayla to eat, 65cc's at 1am and 70cc's at 5am. But Kayla ended up spitting close to 25cc's of the 5am milk, nurses think she might have just gotten to much. So they are only giving her 65cc's at the most. Anyway, Mike was able to give Kayla another full bottle of 63cc's the only unfortunate thing of the day was that Kayla lost weight. Not much but we were so bummed, it will be interesting to hear what the Dr says, I hope that doesn't mean she doesn't get to come home. Carol said not to worry about it because it wasn't even a whole ounce of weight lose, but Kayla is at 6lbs 12oz tonight. Just keep praying that that's not going to be a big deal and Kayla will be able to come home. Oh I really hope so. :/